After being sick for several months, seeing my PCP, an ENT and going to urgent care several times and still feeling awful, I woke up on May 8th 2017, dropped my kids off at school and told my husband I was going to drive myself to the ER because I had enough and I knew they would perform enough tests to figue out what was wrong. Within 4hrs I never thought they would come back and tell me I had a 25% chance survival rate of being here in 5 years having Acute Myeloid Leukemia with FLT 3. I spent the next 30 days in the hospital, came out in remission and then endured another 3 rounds of chemo to keep me in remission while waiting for a bone marrow donor. Out of 26 million people in the world there was not a match however thankfully my one sister was a half match. This is me, I ran a 5k obstacle course after one of my rounds of chemo. That year I miraculously ran twenty-four 5k's and a half marathon just because simply because I could and it was therapeutic. It was a tough tough road, still is and always will be but I am alive and am so thankful for the life I live and lead now. I know I am extremely lucky and have learned a-lot through my journey & for that I need to give back.
Going through it, is indescribable. To make matters worse, the healthcare system gives you a binder with out of date non local resources and pretty much says good luck. Not to mention, any resources you may need are all in the hospital and that is the last place you want to return to. You are too busy fighting for your life, or feeling sick, tired, and worried. Your family is too busy, taking care of you, and worrying about you that they don't have time to read a binder either.
That is why I created the Healing Resource Center. We need a place with all the resources in one spot. We also need resources that are local that also make us feel "normal". I am here to help be that resource for you & your family so you can focus on YOU. Some day we hope to open up a center with all these resources if enough funding is secured.
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